Fund awards annual scholarships to help improve the quality of life for those affected by Leukemia/Lymphoma. A scholarship for adults with rare diseases in a variety of educational pursuits regardless of treatment status. Parent, Family Member, Loved One With Cancer, Brain Cancer/Tumors. An educational scholarship for a student or whose loved one is diagnosed with epilepsy or another seizure disorder. Lupus, Systemic Lupus Erythematosus (SLE). The #RAREis Scholarship Fund was established in 2020 to help adults with rare diseases to pursue their dreams through education. Children with a parent wounded, disabled or killed in military service, Military related, Disabled - Veteran. Scholarship program supports LGBTQA+ and allies who have demonstrated a commitment to advancing the mission of the LEA and the LGBT movement. Psoriasis, Psoriatic Arthritis, Crohn's Disease, Ankylosing Spondylitis, Rheumatoid Arthritis, Uveitis, Ulcerative Colitis, Hidradenitis Suppurativa, Juvenile Idiopathic Arthritis. Autism, ADHD, Brain Injury, Deafness, Learning Disability, Spina Bifida, Bi-Polar Disorder, Cerebral Palsy. Disability - Mobility, Disability - Cognitive, Disability - Developmental, Disability - Emotional, Disability - Intellectual, Disability - Mental, Disability - Physical, Special Needs, Asperger Syndrome, Learning Disability, Depression, Anxiety Disorders, Emotional Disability, Communication Disorders, Mobility Disability, Neurologic, Brain, and Seizure disorders. Deafness, Hearing Loss, Child with a sibling or parent with a disability. The initial phase of the five-year, $1-million #RAREis Scholarship Fund will include 32 scholarships each totaling . Program awards scholarship to a student entering college who has been affected by leukemia. Shes won a Society of Professional Journalists award for outstanding reporting. Program awards kidney/transplant or urology patients, family members or medical caregivers who deserve to be recognized for their courage, strength, determination, generosity of spirit or kindness. Provides over 10 scholarships to students with learning differences who have proven financial need and other specific requirements. RAREis and the HORIZON logo are trademarks owned by or licensed to Horizon. #RAREis Scholarship Fund Apply before: 04/22/2022 # of Awards: 53 Amount: $5,000 Medexus B More Scholarship Program Apply before: 04/28/2022 # of Awards: 20 Amount: THE INFUCARE RX HEMOPHILIA AND BLEEDING DISORDERS SCHOLARSHIP Apply before: 05/01/2022 # of Awards: 1 Amount: Lawrence Madeiros Scholarship Apply before: 05/01/2022 # of Awards: 7 "The RAREis Scholarship Fund is designed to elevate the dialogue within the rare disease community and create opportunities to listen, share, and educate each other about the rare disease experience," said Tim Walbert, chairman, president, and CEO of Horizon Therapeutics, which is sponsoring the program. A wish grant of 2,000 dollars maximum provides cancer patients between the ages of 18-39, something positive to focus on while they are currently receiving active treatment. Scholarships to LGBTQ students currently enrolled in Science, Technology, Engineering, or Mathematics (STEM) or STEM-related teaching fields. Mary graduated from Wayne State University with a degree in journalism. A scholarship for people with hemophilia B to use for any type of post-high school education. The initial phase of the five-year, $1-million #RAREis Scholarship Fund will include 32 scholarships each totaling $5,000 to be used for college or training program costs next spring. For questions about the scholarship program, email Lindsey Cundiff, the foundations associate director of patient engagement, at [emailprotected], 3 W Garden St Program awards two educational scholarships to students diagnosed with a bleeding disorder. Program offers scholarships to survivors of intimate partner abuse, pursuing an education. Programs awards multiple $5000 scholarships to students in communication science master's or doctorate programs. Military related, Paralysis, Military wounded, Paralysis due to Spinal Cord and/or Brain Injury. Program awards hope and inspiration by granting need-based scholarships to high achieving cancer survivors interested in the food service industry. Blood Disorders, Cystic Fibrosis, Autism, Hemophilia, Diabetes, Cerebral Palsy, Asperger Syndrome, Dyslexia, Childhood Diseases - Chronic, Attention Disorders, Crohn's Disease, Legg Perthe Disease, Central Auditory Processing Disorder, Bleeding/Clotting Disorders, Lupus, Inflammatory Bowel Disease, Lyme Disease. Program provides scholarships to students with sickle cell disease who are pursuing higher education. The initial phase of the five-year, $1-million #RAREis Scholarship Fund will include 32 scholarships each totaling $5,000 to . Scholarships for a current paid member of TSSUS to attend the 3-day National Turner Syndrome Conference held each summer in different cities across the United States. Scholarship awarded to individuals with ASD who are pursuing higher education. The amount available varies year to year. Program offers scholarships to young adults who have lost a parent or guardian to cancer, pursuing higher education. Sort by: Name **Filter Feature In Development** Browse by Disease. A college scholarship awarded to students who are considered legally blind. In the U.S., this means a disease that affects fewer than 200,000 residents at any given time. This site is strictly a news and information website about the disease. Program awards scholarships to students who are legally blind pursuing higher education. Provides $5000 grants to young adults who are between age 18-30 years old with life-threatening illnesses to fulfill of a dream, goal, or project to make a difference in their lives and the lives of others. Program provides a scholarship to players who have an immediate family member diagnosed with cancer. Program awards an educational scholarships to a student who lives with the ongoing challenges and complexities of hydrocephalus pursuing higher education. Communication Disorders, Speech Impairment. Scholarships awarded to talented LGBTQ Engineering students in STEM fields pursuing degrees in science, technology, engineering, or mathematics programs. Horizon Therapeutics is not responsible for content or availability of third-party sites. Child with a parent or sibling who has or had cancer. Program offers scholarships to incoming college freshman with Type 1 diabetes pursuing a higher education at an accredited four year school. This study was a retrospective review of MD patients in HK. Addiction, Substance Abuse, Mental Illnesses. Email: [emailprotected] Scholarship award for any current or soon-to-be under grad who has had their life altered due to a bodily injury, be it their own injury, that of a loved one, or an influential individual. A scholarship for college students that are diagnosed with lupus. Educational scholarships awarded to individuals who have been affected by cancer, either by their own diagnosis or that of a loved one. Lyme Disease, Chronic, Serious or Life Threatening Illnesses. Advocating for Patient-Centered, Data-Driven Policy NORD helps drive more effective government policies by elevating the voice of the rare disease community. This scholarship is for young women pursuing a STEM major. Program awards multiple scholarships to undergraduate and graduate students with disabilities who are interested in pursuing a career in the communications, media, or entertainment industry. All applications are de-identified prior to review, and will be evaluated using a scoring rubric by a panel of Sanofi employees who are familiar with the rare disease community but do not currently work in the space. Program offers scholarships created to assist students who either have hemophilia or a similar bleeding disorder, or have a family member with a bleeding disorder. Scholarships at selected colleges, universities, and community colleges for students with spinal cord injury. Program awards a scholarship to students with autism disorders pursuing higher education in a technology field. Program awards multiple scholarships to Ally members who are legally blind or visually impaired completing undergraduate or graduate degrees. The application deadline is Aug. 28 at 3 p.m. CDT. Cystic Fibrosis, Child with a friend or loved one with a chronic or serious physical illness. Applicants of all races, ethnicities, genders, and sexual orientations are encouraged to apply. Every person who lives with a rare disease is more than just a patient, Julia Jenkins, the foundations executive director, said in a press release. Programs offers scholarship grants to children whose parent has been seriously or fatally injured in a work-related accident. Program awards a scholarship to young cancer survivors. A one program per season scholarship to youth under age 18, with or without physical and/or cognitive disabilities who have difficulty paying for the program fees. An educational scholarship awarded to hearing children of deaf adults to help them pursue their post-secondary education. "Higher education is so important, and we are thankful to BioMarin for offering this scholarship to further help people living with a rare disease." BioMarin announced its RARE Scholars program on . An opportunity for patient advocacy leaders to improve the health and mental well-being of the rare disease community-including children, siblings, caregivers/care partners and those who are grieving. Go here to apply. A scholarship for youth ages 15 or younger that are diagnosed with down syndrome to assist with costs for educational or recreational opportunities. Scholarships are open to any adult living with a rare disease in the U.S. who is over the age of 17. Applicants must be Histio Warriors/patients, siblings, or child/grandchild of an adult patient. You are now leaving the #RAREis Community website. March 15, 2023 - Scholarship Application Window Opens. Program awards scholarships for the legally blind attending a technical college. Scholarships are awarded biennially to legally blind selected applicants studying for a career in the field of services to children or adults who are blind or visually impaired. Provides a limited number of scholarships for community members, veterans and caregivers living with limb loss and limb difference to attend the Amputee Coalition National Conference. Program provides educational scholarships in the amount of $1000 each year to support students young adults who live with the ongoing challenges and complexities of hydrocephalus. A scholarship awarded to any current or soon-to-be undergrad who have had their life altered due to a bodily injury from an automotive or pedestrian accident. Program offers a scholarship to a person diagnosed with Common variable immune deficiency, selective IgA deficiancy or Familial Agammaglobulinemia pursuing higher education. Financial assistance grants for people under 21 without medical insurance to put towards diagnosis and treatment. Program awards a scholarship to student a with significant bilateral hearing loss pursuing higher education at an accredited non-profit school. Program awards scholarships to men with hemophilia or von Willebrand disease, or to their immediate family members. A scholarship for students who have been diagnosed with lyme disease. Must demonstrate a commitment to furthering LGBTQ+ visibility, diversity, and inclusion in the biosciences. An educational scholarship for students who are survivors of cancer or have an immediate family member that is a cancer survivor, or has passed away due to cancer. Program provides scholarships for students with heart disease or deformities pursuing higher education. Program awards a scholarship to student with cancer which resulted in delayed college entry. A scholarship for a disabled student, either a graduating high school senior accepted into an accredited school or an undergraduate student. Mary Chapman Provides scholarships to high school seniors living with a chronic disorder and continuing their education at a college or university. Program offers scholarships to adults with ASD who want to pursue a post-secondary education. Provides a scholarship to students in the bleeding disorders community pursuing a degree in medical/healthcare services field. Offers scholarships between to cancer survivors between the ages of 17-39. Childhood Cancer, Parent, Family Member, Loved One With Cancer. A one time $1,500 dollars scholarship to one outstanding female college student pursuing a STEM degree and who is in active-duty military. Program awards (2) scholarships to individuals with down syndrome who are pursuing educational or job training opportunities beyond high school. Program awards scholarships for students with or impacted by a loved one with mesothelioma pursuing higher education at a four-year college or university. Program awards scholarships to students that are blind, low-vision or have a physical disability pursuing higher education. Program provides annual college scholarships to undergraduate students with a childhood diagnosis of Type 1 diabetes. Learn more about the #RAREis Scholarship program on the Patient Worthy podcast and apply for the scholarship at RareScholarship.org. by Program provides a scholarship to a high school senior with an identified learning disability pursuing higher education. Program offers scholarships for individuals with disabilities that are interested in earning a Sport Pilot license. Program offers educational funding for cancer patients and cancer survivors to continue their education. 2020. The health information contained herein is provided for educational purposes only and is not intended to replace discussions with a health care provider. Program offers financial support to students whose lives have been affected by rheumatoid disease. Diseases requiring enteral or parenteral care, Gastrointestinal Disorders. Awards $3500 college scholarships to childhood cancer survivors, under the age of 25. Scholarships awarded to current or former cancer patients of the Valerie Fund for post-secondary education expenses. Our organization is run 100% by volunteers and 100% of the money we raise is used to assist students or brain tumor families during the most difficult time in their lives. Program awards scholarship to high school seniors with learning disabilities pursuing higher education. Program offers scholarships to students diagnosed with clinically significant bilateral hearing loss. Provides educational scholarships to young adults with who are cancer survivor or current patients, and are pursuing their education. webmaster. Scholarship America will manage the scholarship application process, selection process and distribution of funds independent of Horizon Therapeutics input. Disability - Physical, Disability - Cognitive, Disability - Emotional, Learning Disability, Social Disability, Sensory Disorders. Program offers need-based scholarships and educational experiences to high achieving cancer survivors pursuing a music related field of study. Program provides scholarships to students diagnosed with down syndrome seeking higher education or post-secondary classes. Two $500 Chinn Scholarships for LGBTQ Atheist Activism that recognize atheist activism in the area of LGBTQ equality. Program provides financial assistance for educational tuition and related expenses for pre-kidney transplant patients whom are or will be undergoing dialysis treatments. Program awards a scholarship to an individual pursuing a junior college, undergraduate or graduate degree student who has a sibling with down syndrome. Physical Disability, Spina Bifida, Chronic, Serious or Life Threatening Illnesses, Spinal Cord Injuries, Urostomy, Transverse Myelitis, Ileostomy, Neurogenic Bladder, Colostomy. Every person who lives with a rare disease is more than just a patient, Julia Jenkins, the foundations executive director, said in a press release. Program awards a scholarship to a full-time undergraduate student with limb loss or limb difference. Scholarships awarded to individuals who have been affected by HIV/AIDS, either by their own diagnosis or that of an immediate family member. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. A scholarship for college students with a medically recognized physical or mental disability. An educational scholarship for students at University of Wisconsin Madison that have a disability. An educational scholarship for students attending a California college/university with a learning disability in math. Scholarships awarded every year to college bound high school seniors with superior academic and extracurricular achievements who suffer from a chronic disease or other serious challenge to physical or mental health. Scholarship fund for college bound students of single parent homes due to a loss of a parent or guardian, due to breast cancer. This scholarship is for young women majoring in Business. National Hemophilia Foundation - Novo Nordisk, Inc. National Hemophilia Foundation - The Coalition for Hemophilia B, National Organization of Lesbian and Gay Scientists (NOLGS), Paralyzed Veterans of America Headquarters, Rexanna's Foundation for Fighting Lung Cancer, Shaundrika Taylor Cancer Foundation, Inc. (STCF), Sickle Cell Thalassemia Patients Network (SCTPN) - Brooklyn, Susan Satriano Memorial Scholarship Foundation, Teen with a Dream - A Pediatric Cancer Foundation, The Colburn-Keenan Foundation, Inc. (CKF), The SamFund - Support for Young Adult Cancer Survivors, The Susanna and Lucy DeLaurentis Charitable Foundation, Transplant Recipients International Organization, Inc. (TRIO), Turner Syndrome Society of the United States, United States Association of Blind Athletes, United States Association of Blind Athletes (USABA), University of North Texas (UNT) - Eagle Student Services Center, University of Wisconsin Madison Office for Students with Disabilities, Veterans United Home Loans - Veterans United Foundation, Women's Independence Scholarship Program, Inc. (WISP). ), Mesothelioma Cancer Victims Memorial Scholarships, National Center for Learning Disabilities (NCLD), National Collegiate Cancer Foundation (NCCF), National Hemophilia Foundation - Kevin Child Scholarship. While scientific advances continue for many of these diseases, individuals living with such disorders still encounter obstacles in achieving traditional life milestones. Program offers scholarships to individuals with disabilities pursuing higher education. Mental Disability, Autism, Physical Disability, Disability - Emotional. Program offers scholarships to full-time graduate students with moderate-severe to profound pre-lingual hearing loss. Program awards scholarships helps people with CF and their immediate family members pursuing higher education. Thanks to the support of Horizon Therapeutics, The EveryLife Foundation is pleased to announce its third year of the #RAREis Scholarship Fund, a scholarship dedicated to the rare disease community. Spinal Cord Disorders, Spinal Cord Injuries. Veterans - Disability/Injured-Families, Military related. Learn More About the Grant. The #RAREis program, which was started by Horizon as a social media campaign to elevate the rare disease community, aims to raise awareness of those living rare disorders. Learning Disability, Dyslexia, Speech and language Delays or Impairments. Living with a rare disease can create many challenges accessing education shouldnt be one of them. This scholarship program is through Sanofi. Applicants do not need to be pursuing a degree to be eligible, but they have to be U.S. residents over the age of 17.
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